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Mitochondrial disease is an inherited, chronic illness that can be present at birth or develop later in life. “Mito” is progressive and can cause physical, developmental, and cognitive disabilities.
MitoAction provides a lifeline to patients of this rare disease, helping them to know they aren't alone on their journey. We strive to offer comprehensive, up-to-date, expert resources, information, and support at no cost to any patient, family, clinician, educator, or member of the community.
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives, and by granting wishes for children affected by mitochondrial disease.
Your microgift supports people of all ages affected by mitochondrial disease. Thanks for giving a little and sharing a lot!
MitoAction’s goals include:
Our Marcel's Way Family Fund provides financial assistance to families in the form of a one-time grant to assist with costs associated to mitochondrial disease. The Matthew Harty Camper Fund allows us to send kids with mitochondrial disease to summer camp and offer scholarships to college-aged students with mitochondrial disease.
"Because of MitoAction, I was able to pay for my power-assisted wheelchair so I could attend classes. I never realized how much independence I had lost."
“Because of MitoAction and the Matthew Harty Camper Fund Scholarship, I am able to focus on undergraduate research opportunities and my education.”
With our support, education, and advocacy services, we are able to walk hand-in-hand with patients through each step of their journey. Families come to us during diagnosis trying to understand what their future looks like. They come to us along their journey to better understand how to manage their own care, and they have come to us during their loved ones' end days for emotional support. We celebrate their victories and offer support during challenging times.
So many of our patients feel alone, isolated, scared, and unsure where to turn. MitoAction is able to step in to provide one-on-one support through our Mito411 Support Line, group support through our Weekly Support Calls, Monthly Support Calls, and MitoSocials.
“Thank you for ALL you do. You’ve been such an incredible resource — and I feel this long nine-year journey may finally be leading me to some answers!" – Mito411 Caller
MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began in 2005 as an idea and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same: to make a measurable impact in the lives of those who are affected by mitochondrial disease.
Originally founded as the Mitochondrial Disease Action Committee, the organization officially changed its name in 2008 to MitoAction.
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Together we’ve become volunteers in places we would have never expected, planted milkweed for butterflies, provided books to kids in need, helped save endangered turtles, helped turn excess food into nutrition, helped bring art to youth, educated one another about how we are connected to our delicate food systems, helped save abandoned horses and given old dogs new hope, watched foster youth shine in the spotlight of movie making, helped clean tires out of rivers… we could go on and on and on. It is an absolute joy to be a part of such an amazing network of humans making a difference.
“ALMA reconnects the lives of the formerly incarcerated back to the fabric of society. Our participants have the chance at attaining gainful employment and becoming self-sufficient. Urban Farming helps everyone involved explore the relationships between plants, animals and humans as a way of creating a profound connection to both nature and their community.” - ALMA Backyard Farms
While we’re writing this and you’re reading it, Pajaro Valley Loaves and Fishes is out there, finding ways to provide food to more people in need throughout Santa Cruz County, where one of three residents are reported to be food insecure.
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